Report Your Experience
It is very important to report your experience!
The more people that report their experiences, the more data will be available for research. It also helps to raise awareness so that hopefully, policy makers will take action to give patients the informed consent that is currently lacking, and support sufferers of PSSD, PFS, PAS.
Report to your GP -
Report on RxISK website (RxISK is led by Dr David Healy, psychiatrist and psychopharmacologist, and is the most influential organisation in seeking to increase the profile of PSSD and encourage research):
https://rxisk.org/experiencing-a-drug-side-effect/
Report to the Medicines and Healthcare products Regulatory Agency in the UK (MHRA):
MHRA – National Yellow Card Information Service
Phone: 0808 100 3352
E-mail: pharmacovigilance@mhra.gsi.gov.uk
Report Online: https://yellowcard.mhra.gov.uk/
Mail to: MHRA, CHM FREEPOST, London SW8 5BR
Write to your UK MP:
A member of the community has discussed PSSD with his MP. This MP has set up an action group to discuss PSSD further. We need more people to write to their MPs to strengthen our position.
Follow the instructions and use the template letters provided here.
Report Your Concerns to the Department of Health and Social Care:
There is a contact form on the website.
Phone Number: 020 7210 4850